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Friends where are they? Options
susan-F
#1 Posted : Thursday, January 27, 2011 5:50:41 PM Quote
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ThumbDown I have recently been diagnosed with RA, i have been off work for 5months am hoping to go back shortly, but you never know.
I would like to ask has anyone found that their friends are not as supportive as you thaught they would be? I can't believe how many people who I thaught were my friends have not been there for me, even for a quick visit for a cuppa?
Sue
jeanb
#2 Posted : Thursday, January 27, 2011 5:57:10 PM Quote
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Hi Sue

Firstly welcome to the forum - where you'll make new friends and be able to share with people who completely understand what you are going through.

Sadly, there are those who don't want to know us when we are (in their eyes) "different". I'm sad to say that it has happened to most of us at one stage or another in our RA journey. From my own experience, you will also be surprised by people who are very very supportive. I know it's hard but you will find out your true friends, and, as I said before, make loads of new and VERY supportive friends on here.

Love Jeanxxx
dorat
#3 Posted : Thursday, January 27, 2011 6:32:42 PM Quote
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Hi Sue,

Welcome to the forum where you'll make lasting friendships with people who know exactly what you are going through.
I haven't exactly lost any friends since I've had RA (10 years) but most of them don't ask how I am, they presumably think I am "over it" after all this time. After all, I "don't look ill!" Family are just the same, apart from my husband and daughter who see what I have to live with.
It doesn't really bother me now, because my true friends are the ones I've made on here!
Keep posting , looking forward to getting to know you.

Love, Doreen xx
SueB
#4 Posted : Thursday, January 27, 2011 7:28:13 PM Quote
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Hi Sue -from another Sue (there are quite a few of us on here!) Welcome to the forum. Here is somewhere you can let off steam to friends who do understand.
I think part of the problem is that we often don't 'look' ill and so people forget. Also they don't really know or understand what RA is. I am so fed up with people saying 'Oh yes, my leg/hip/hand or whatever aches sometimes' or' I've got a bit of arthritis in my knee'. I've been lucky in my work colleagues. I've been very open about what I have and my drugs, blood tests etc and they have been really supportive. I see it as my way of educating them about RA!!
Keep on posting
Sue
Ailsa-H
#5 Posted : Thursday, January 27, 2011 8:04:06 PM Quote
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Hi Sue - hope you soon feel you are among friends here. I know it is hard when people you thought were close don't seem to want to know and only want the old you (who probably did most of the 'work' keeping the friendship going!) Thoughts are with you and looking forward to getting to know you more xx Ailsa
Kathleen-M
#6 Posted : Thursday, January 27, 2011 8:09:40 PM Quote
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Hi Sue, welcome from me.
Sorry to hear whats going on, I think because people can't see something physically wrong they don't really know what to say or how to ask questions, so they do the only other thing and avoid the situation.
It's human nature I suppose.
Somehow they need to find out about RA and what it's like, if you get the chance talk about it to them and let them know. Maybe they'd like to ask about it and feel they don't know what to say.
Don't give up on them yet,we all need our friends.
You'll make loads of friends on here, get plenty of info and be able to talk about anything. Take care and try not to worry, love Kathleen xx
AnnieB
#7 Posted : Thursday, January 27, 2011 8:13:40 PM Quote
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Hi Sue,

Welcome to the site, you will receive all the support you need on here, when you need someone to talk to get a cuppa and log on.

This site has given me nearly all the support I have needed.

Anne x

LynW
#8 Posted : Thursday, January 27, 2011 9:12:17 PM Quote
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Location: Thornton Cleveleys
Hi Sue

Welcome to the forum. Hope you enjoy mooching about, finding lots of useful information from our life experiences (always the best, I think!) and making lots of new friends! You are in just the right place ThumpUp

Friends? Like you, many of my so-called friends did a fast disappearing act when illness appeared. I think the problem is we are different, we have different needs, we can only do certain things, we take meds, we inject, we go to the doctors ... continually, hospital visits, blood tests, physio, podiatry. It's all part of the package that becomes 'our life'. Friends don't understand ... should they? Half the time (if not more!) we don't understand it ourselves!!!

Friends? They come and go but be sure you will always find a listening ear here and as much support as you need. I have made some lovely friends here and I know that through good times and of course the bad times they will always be here.

Be positive, you have arrived, so keep posting. Look forward to getting to know you Smile

Lyn x

PS Don't forget the cuppa LOL
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

Kathleen_C
#9 Posted : Thursday, January 27, 2011 10:24:35 PM Quote
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Hi Sue, and welcome to the forum. Others have made very valuable points, and I`m completely in agreement with them - we have all lost friends who simply can`t or won`t take the trouble to listen and/or support us. One of my so-called friends accused me of not being fun any more, when I couldn`t drive us both to the Metro Centre any more and shop till we drop!

Good friends are a different matter, and I`m fortunate that I have some, but there have been some amazing friendships formed on this forum, with people who know exactly what RA is like, and the mayhem it can cause in our lives.Do keep posting, and you will find this out for yourself.

Take care,

Kathleen x

Rose-B
#10 Posted : Thursday, January 27, 2011 10:30:57 PM Quote
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Hello Sue

Welcome to the Forum however sorry that you have the blasted RA.

Yes totally agree with regards to friends and acquaintances I suppose , you certainly do
find out who are your real friends. The ones that are always there. As others have said
you will find this site good for advice , friendship and of course if necessary having a
good old moan. We are allowed you know.

I am Rose from Somerset - Keep posting

Rose
ceri44
#11 Posted : Friday, January 28, 2011 5:41:22 PM Quote
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Hi Sue
Welcome to the site.. I joined in Sept and it really is a great place for advice, understanding and having a good moan when you need to! Look forward to getting to know you x
Anthea1948
#12 Posted : Friday, January 28, 2011 5:41:26 PM Quote
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Hi Sue, and welcome to the forum. Sorry you've got RA and that you've found some friends not as supportive as you might like. You'll certainly get loads of support on here and, who knows, maybe some friends are just taking time to get used to the idea that there may be some changes they have to adapt to. Sadly though, this awful disease does let you know exactly who your real friends are,
jenni_b
#13 Posted : Friday, January 28, 2011 6:27:47 PM Quote
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Hi sue,

Jenni here! Glad to see you have joined in with the gangSmile

Listen, I did a thread a while ago on the relationships bit about my christmas meal debarcle with our "friends". Might be worth a look...
You certainly find out who your real friends are. Some people cannot cope with the concept of you not getting better or not going to snuff it in 5 mins (it seems to need to be one or the other in some peoples mindsScared ThumbDown )

Welcome againSmile
how to be a velvet bulldoser
Carol_F
#14 Posted : Saturday, January 29, 2011 8:47:45 PM Quote
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Hi Sue welcome to the forum

you will find lots of help and support here.

I too found that my 'friends' were not who i thought

i agree with 'the other Sue' we often don't look ill and people cannot understand what goes on with RA suffers.

Keep posting

take care

love caz xx
Lorna-A
#15 Posted : Saturday, January 29, 2011 8:53:35 PM Quote
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Hi Sue,

A warm welcome from me too. I am Lorna I have had RA for 3 years, it is very difficult to get your head around the diagnoses but we are a good team on here and always there to listen and understand.

Thinking about you, take care

Lorna x Smile
susan-F
#16 Posted : Sunday, January 30, 2011 2:21:28 PM Quote
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BigGrin Thanks to everyone for your kind words, it is nice to know there are people who know exactly how you are feeling.
Coming to terms with having RA is really hard and I am struggling with this, I miss work and each day seems longer.
Are the meds working? Am I suppose to feel how I did before ? Im on Hydroxychloroquine and 5mg prednisolone.
emily
#17 Posted : Sunday, January 30, 2011 5:31:27 PM Quote
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Hello and welcome Sue, everyone here is very friendly and offers much support,
if things dont feel they are improving (although the hcq can take about 12 weeks to kick in sometimes) could you ask your consultant if you can increase the prednisolone to help you?

EmilyXXX.
Kathleen-7
#18 Posted : Monday, January 31, 2011 8:16:33 PM Quote
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HI SUE HOPE YOU HAVE REALISED BY THE RESPONSE TO YOUR POSTING THAT YOU MAY FEEL YOU HAVE LOST A FEW FRIENDS YOU HAVE NOW GAINED SO MANY MORE WHO ARE IN THE SAME POSITION AS YOU AND UNDERSTAND HOW YOU ARE FEELING RA IS A HORRIBLE AILMENT AND ONE I DONT THINK ANY OF US REALLY ACCEPT BUT LIKE MOST THINGS IN LIFE WE LEARN TO LIVE WITH IT
LIKE OTHERS HAVE SAID SOMETIMES WE LOOK OK SO PEOPLE THINK WE ARE AND IT IS JUST A BIT OF ARTHRITIS SO WHAT BUT I THINK ALSO IT FRIGHTENS SOME PEOPLE IT HAPPENS SO QUICKLY AND THE PERSON THEY KNEW HAS GONE SO THEY DONT KNOW HOW TO REACT AND FIND IT EASIER TO STAY AWAY, I HOPE YOU WILL ACCEPT EVERYONES FRIENDSHIP AT NRAS TAKE THIER COMENTS ON BOARD AND TRY TO KEEP POSITIVE NOT ALWAYS EASY AS WE ALL KNOW BUT WE ARE ALL HERE FOR YOU
TAKE CARE KATEThumpUp
Laura-C
#19 Posted : Wednesday, February 09, 2011 7:41:11 PM Quote
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Location: Edinburgh
Hey Sue,

I think we all know how it feels to be dissapointed by your friends when you are ill (i think dissapointed is the right word) but what i always have to remind myself is that the ones that are worth knowing are the ones that stick by you - they would rather sit and chair dance with you, than go up on the dancefloor without you. I know its hard and so totally unfair, but at least you know we are all going through the same thing

hope things brighten up for you

Laura
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